Last updated on November 26, 2023
Podcast 0099, Season 6, Episode 9; 14 March 2023
Kristen Fowler on Fragile X and Parenting
Kirsten Fowler is the author of Family, Faith, and Fragile X: The Raw Story of a Mother With Three Special Needs Children. She resides in Utah with her husband and four children, three of which have Fragile X Syndrome.
She loves music, art, theater, and occasional adventures. Amidst her challenges she tries to laugh rather than cry, have a good sense of humor, and share her experiences to help others find hope and joy.
Kirsten Fowler has had a love for writing since a young girl and always kept a journal for expression, therapeutic value, and family history. Throughout high school and college she wrote and designed for several newspapers. She currently lives in a small town in Utah with her husband, Jeremy, her four children, Millie, Isaac, Eliza, and Evelyn as well as their dog, Luna. She is a jack of all trades, master of none. Kirsten dabbles in music, including singing, guitar, ukulele, fiddle, and, of course, the recorder. She also likes to draw and paint, whether on canvas or furniture. Dancing is a love of hers, but now simply enjoys waltzing around the kitchen with her husband or jamming out to tunes with her kids. When she really takes the time, she will even do needle work, and when she is feeling adventurous, she loves indoor rock climbing. Otherwise, she is cleaning, cooking homemade meals, chasing her kids, serving in the community, and keeping in touch with family and friends the best she can.
Kirsten: This is my website where listeners can find a direct link to my book on Amazon as well as a link to a list of hundreds of helpful items to purchase with link where to buy them. There are also more stories from my life to read there.
Family, Faith, and Fragile X: The Raw Story of a Mother with Three Special Needs Children. (May 2022) https://amzn.to/3RybkBG
Transcript
(in progress)
As science advances, researchers continue identifying genetic and neurological markers for the traits associated with the autism spectrum. Mental health researchers continue to debate whether physical causes can or should be included within autism diagnoses. Some argue that once a biological marker has been identified, the diagnosis becomes a medical condition. The American Psychiatric Association historically has removed medical diagnoses from the Diagnostic and Statistical Manual of Mental Disorders.
It is unfortunate that our healthcare system continues to arbitrarily separate mind and body. Supporting Neurodiversity requires that we care for the mind and body, embracing a holistic approach to wellbeing.
Welcome to Perspectives on Neurodiversity, a podcast dedicated to challenging myths and assumptions about Neurodiverse life. I am your host, Christopher Scott Wyatt, speaking as The Autistic Me.
Joining for this episode of the podcast is Kirsten Fowler, the author of Family, Faith, and Fragile X: The Raw Story of a Mother with Three Special Needs Children. Kirsten has had a love for writing since she was a young girl and has always kept a journal for expression, therapeutic value, and family history. Kirsten lives in a small town in Utah with her husband, Jeremy, and their four children, three of whom do have Fragile X Syndrome.
(transcription in progress)
I hope you enjoyed this episode of Perspectives on Neurodiversity. Remember to subscribe to the podcast, and please leave a review if you found the discussion useful.
Don’t forget to read The Autistic Me blog and follow my posts on social media. Look for “Autistic Me” as one word on Twitter, Facebook, and LinkedIn. Links to The Autistic Me on social media are included in the show notes.
I am Christopher Scott Wyatt, speaking as The Autistic Me.
The Autistic Me
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